This post has been a long time coming.
Then again maybe it hasn't? When I first started this blog, after all, it was just to keep my family & friends both near and far updated on our life abroad and the said bfs and fam already know this?
But then you happened, all 300+ of you. You who I'm so thankful for and that encourage my heart and make me laugh through each of your stories. You who leave the sweetest comments and brighten my days. You who can relate with moving and you who have been on some truly inspiring life journeys.
So it's to each of you that I feel like I should share a little bit more about me.
So lately, as in the past 6 months or so, there has been a weight on my shoulder.
A decently heavy one might I add.
I blog about the "real" and if that's the case what about this part?
Then again maybe it hasn't? When I first started this blog, after all, it was just to keep my family & friends both near and far updated on our life abroad and the said bfs and fam already know this?
But then you happened, all 300+ of you. You who I'm so thankful for and that encourage my heart and make me laugh through each of your stories. You who leave the sweetest comments and brighten my days. You who can relate with moving and you who have been on some truly inspiring life journeys.
So it's to each of you that I feel like I should share a little bit more about me.
So lately, as in the past 6 months or so, there has been a weight on my shoulder.
A decently heavy one might I add.
I blog about the "real" and if that's the case what about this part?
If this blog is about me, isn't this part of who I am?
Shouldn't I share and be vulnerable? OR should I keep this tiny significant sized secret all to myself? If so when?
Then something thought why not now?
So here we go...
I'm like any ordinary 20 something year old.
I love my Lord, I adore my husband, my family is amazing and I'm a little obsessed with my incredible circle of friends. What else... I'm slightly addicted to coffee, I crave the sunshine, music makes me move, accessories and clothes make my wallet cry and my ultimate goal is to live out my purpose in life and honestly try to look on the bright side of every single day while trying to make every moment count.
But that's not all...
Let's go back say...25 years ago?
My parents were hit with some daunting news. The news that parents cringe to hear, although when they heard it they were unfamiliar {like most} and unaware of what those two words entailed.
At six months old I was diagnosed with Cystic Fibrosis.
Maybe you are also unfamiliar or know what "CF" is and your thoughts are more like, "who knew!?" But it's true. That's another part of who I am and something that I've lived with for my entire life. I'm not one to let this stop me from doing anything and if I wanted I could almost mask it from those that I didn't want to know.
This little secret I've left entirely off of this blog, merely because I didn't want it to be the "CF story" or the "poor thing journal".
Instead I wanted it to be about all of the other amazing blessings in my life and I think I've accomplished that but, something still told me to share this part of the story.
So here we go...
I'm like any ordinary 20 something year old.
I love my Lord, I adore my husband, my family is amazing and I'm a little obsessed with my incredible circle of friends. What else... I'm slightly addicted to coffee, I crave the sunshine, music makes me move, accessories and clothes make my wallet cry and my ultimate goal is to live out my purpose in life and honestly try to look on the bright side of every single day while trying to make every moment count.
But that's not all...
Let's go back say...25 years ago?
My parents were hit with some daunting news. The news that parents cringe to hear, although when they heard it they were unfamiliar {like most} and unaware of what those two words entailed.
At six months old I was diagnosed with Cystic Fibrosis.
Maybe you are also unfamiliar or know what "CF" is and your thoughts are more like, "who knew!?" But it's true. That's another part of who I am and something that I've lived with for my entire life. I'm not one to let this stop me from doing anything and if I wanted I could almost mask it from those that I didn't want to know.
This little secret I've left entirely off of this blog, merely because I didn't want it to be the "CF story" or the "poor thing journal".
Instead I wanted it to be about all of the other amazing blessings in my life and I think I've accomplished that but, something still told me to share this part of the story.
It's so easy to paint life as a pretty picture with only the weather to complain about but that doesn't encourage anyone. If this post could bring hope or optimism to just one then I've already done enough by sharing my story.
The picture above is from the Rock N' Roses CF fundraising event in 2010. This is an event that was established by a few friends and myself.
Another goal in life is to raise as much awareness and money for research as I can in hopes of making CF stand for "Cure Found". When you are faced with something in life you could wallow around in it or you can turn it into a positive? Hitting it head on with a purpose sounded like the best option for me. Fundraising for this cause has been just as much a part of my life as living with CF. My parents got involved when I was young and I can't count on my fingers and toes the number of events that we have been a part of. I truly believe we are on the brink of a cure and the more research that's able to happen the sooner we will be to this ultimate goal!
R&R 2010 is also where Stephen and I met, you can read more about that here.
We had a 2nd Annual event in 2011 and you can read more about that here.
Oh and remember that race my Daddy-O did in London last year? That too was to raise some more mulah to help speed up the research process.
I'm now generally healthy but my lungs need some extra TLC sometimes and that brings us to now. I'm now going to be undergoing a "lung tune-up" per say for two weeks in order to improve my current lung function. These two weeks will consist of aggressive treatment in the hospital in hopes to increase my ability to use these babies to the fullest extent possible. After this stint hopefully I can run with the wind and not think about hacking up a lung ha. So this needed stay has nudged me to share this part with you. After all, if I was going on a two week vaycay I would share that with you.
So I couldn't let these next two weeks go by without finally whispering one of my best kept secrets.
So what is it anyway and how does it affect me?
CF is a genetic disease affecting over 30,000 children and adults in the United States today. It mainly affects your lungs but in my case it affected my liver more aggressively.
In 2005 I was blessed with a liver and pancreas transplant, the Lord's hand has been in it all, and everything went smoothly. I have a little mark left on my tummy as proof of this miracle. It was a time in my life that I will never forget and maybe I'll share more about that story a little later on.
The picture above is from the Rock N' Roses CF fundraising event in 2010. This is an event that was established by a few friends and myself.
Another goal in life is to raise as much awareness and money for research as I can in hopes of making CF stand for "Cure Found". When you are faced with something in life you could wallow around in it or you can turn it into a positive? Hitting it head on with a purpose sounded like the best option for me. Fundraising for this cause has been just as much a part of my life as living with CF. My parents got involved when I was young and I can't count on my fingers and toes the number of events that we have been a part of. I truly believe we are on the brink of a cure and the more research that's able to happen the sooner we will be to this ultimate goal!
R&R 2010 is also where Stephen and I met, you can read more about that here.
We had a 2nd Annual event in 2011 and you can read more about that here.
Oh and remember that race my Daddy-O did in London last year? That too was to raise some more mulah to help speed up the research process.
I'm now generally healthy but my lungs need some extra TLC sometimes and that brings us to now. I'm now going to be undergoing a "lung tune-up" per say for two weeks in order to improve my current lung function. These two weeks will consist of aggressive treatment in the hospital in hopes to increase my ability to use these babies to the fullest extent possible. After this stint hopefully I can run with the wind and not think about hacking up a lung ha. So this needed stay has nudged me to share this part with you. After all, if I was going on a two week vaycay I would share that with you.





Best post ever.
ReplyDeleteReally.
Brave. Brave. Woman.
Also, you look like you're in Narnia and I love your long hair!
ReplyDeleteYour strength is admirable!!! I love the way you look at your challanges with such positivity.
ReplyDeleteWhat a strong and positive woman you are! God has truly blessed you and your family. I'll say a little prayer for you today that these next two weeks go by smoothly for you. Thanks for sharing your inspiring story. This is the realities in life and it all takes us beyond the superficial and makes us realize how much we need God and prayer!
ReplyDeleteMaggie
What a lovely, courageous woman you are. You're blessed with having a strong faith, along with family and friends to help ease the burden of living with a chronic disease like CF. Thanks for sharing your story, and I hope those two weeks go by quickly and that your treatment is successful. :)
ReplyDeleteMy sorority works very closely with the cff as it was founded by one of our Sisters whose son had cf. thanks for sharing this part of yourself and continue to live your beautiful life as you have been :)
ReplyDeleteYou are inspiring. Thank you for sharing.
ReplyDeleteSo inspiring. Will be praying
ReplyDeleteThank you s much for sharing! There are a few things that have been on my heart to speak a little more openly about on my blog and you have truly encouraged me to go ahead and do it. I am so glad that I found your blag through Erin a few months back and I pray that I can continue to share in your journey. God bless.
ReplyDeletexoxo
What a brave woman for sharing this with us. Thank you!! I will be praying for you and I hope your back to your blog real soon.
ReplyDeleteHugs from New Jersey!
Tara, you're so brave to reveal another part of you. I think when people reveal more about themselves, it just makes them that much more lovable. How can you not love honesty or an honest person. I'll be praying that your next couple of weeks go as smoothly as they can. Knowing what people are going through in life helps us to better support them as they go through it. Glad you shared, friend! :)
ReplyDeleteThanks for posting this!! I will be thinking of and praying for you and the strength of your lungs! Hope everything goes great!
ReplyDeleteI am so grateful that you opened up and were "vulnerable" to share your story. You're right that this is YOUR blog, so why not share YOUR story (your joys & struggles). I adore your story even more and will certainly be keeping you in my thoughts and prayers during your "lung tune-up vaycay" You got this girl!
ReplyDeleteThank you for sharing your story with everyone. I admire your strength and perseverance. I would have never even known you had CF. I'll be thinking of you during your lung tune-up and hope it works out for the best for you!
ReplyDeleteYou will be in my prayers, hope you come out stronger than ever!
ReplyDeleteI love you even more after hearing your story. Thanks for being brave enough to share it! I love how positive you are and I love that I now know how to pray for you with your upcoming procedure. You are awesome and I truly admire your outlook Tara!!
ReplyDeleteBeautifully written!! Amazing! Strong woman!
ReplyDeleteThank you for being so candid and so brave. This post is beyond inspiring. Good luck these next two weeks and hope you come out of it healthier and just that much stronger. Hugs!
ReplyDeleteWhat an incredible story. You are so strong and inspiring for sure. and not to mention you look gorgeous in those photos!! I'll be sending good thoughts your way over the next two weeks. Best of wishes!!
ReplyDeleteI just love you Tara. If I've said it once, I've said it a thousand times...you ALWAYS know how to find the sunshine in even the darkest of situations. Thank you for sharing your story with us sweetheart. Praying for a successful two week lung vacation and I will miss you while you are gone :-) Sending lots of hugs overseas. xoxoxo
ReplyDeleteThank you for sharing, I know it isn't easy to open up about stuff like this and your story was really inspiring. I'll be praying for you over the next few weeks :)
ReplyDeleteurmeganmecrazy.blogspot.com
I used to work at Seattle Children's Hospital in the CF department so I am very familiar with it. This is such an amazing and uplifting story to share and I admire your positive attitude so much! Having worked in the CF department I am also very passionate about finding a cure for this disease and I'll be keeping you in my prayers. Keep thriving at life - you are amazing!
ReplyDeleteGirl you are so fierce!
ReplyDeleteWOW! I am on the verge of tears because I am so so blessed and encouraged by your story. You are an amazingly strong woman. It is true that God is working miracles in your life and I am so grateful for you. I will be intensely praying for you over the next couple of weeks. I don't know all the details about what you're going to be going through, but I am sure it won't all be easy. I pray that everything goes smoothly and that there will be a positive difference in your life. You are an inspiring person and you should be very proud of your attitude. I think it is great what you are doing for others, as well. Thank you for sharing.. it really did make a difference.
ReplyDeleteAshle'
theultimatesisterhood.blogspot.com
oh wow tara you kept this secret so well but thank you for letting us know more about you. will be praying for this clean-up you are undergoing and don't be afraid to let us know a bit more about you, we love you just the same if not more because of your courage to tell us!
ReplyDeleteThanks so much for sharing that difficult part of your life!! I think we all have that thing that we keep from our blog friends, but eventually it comes out because of the relationship you build with others. I wish you the best of luck over these next two weeks and I know God has his hands over you for extra protection and love to get through the "tune-up"! I look forward to you getting back to the blog and being whole and new! :)
ReplyDeleteThank you for sharing that!! I would have never had any idea but will be praying for you these next 2 weeks!! Hope those lungs get better!!
ReplyDeleteThank you for sharing this! I am aware of CF and I love the positive attitude you have taken to life, as well as the amazing fundraising you have been a part of! I hope your hospital stay goes very well; I will be keeping you in my thoughts and prayers!!! Please keep us posted!
ReplyDeleteWay to go girl, you are so strong. Thanks for sharing this! :)
ReplyDeletexoxo Jamie
Thanks for sharing and you're so much brave I must say.
ReplyDeleteTara you are so beautiful!! and I'm proud of your for sharing. I have a good friend who has CF and have seen her go through a lot. I will be thinking of you and praying for you these next two weeks!
ReplyDeleteYou're remarkable! I hope the next two weeks go smoothly and painlessly!
ReplyDeleteXx
Very nicely written. I have heard of CF before but didn't really know much about it. Thank you for sharing. I hope the next couple of weeks are smooth sailing for you. You are an amazing person. It's so great that you and your family continue to raise money for CF as often as you can.
ReplyDeleteI will be thinking of you!
You are remarkable and a strong women!! Good luck in the next few weeks :)
ReplyDeletexo
http://beautybymissash.blogspot.ca/
You are such a strong women!! thanks for your sweet comment on my blog today! it's good to be back!!
ReplyDeleteHi Tara....I've been reading your blog for a few months now and think you are just adorable. I have a cousin ( he is 41 ) who has CF and had a lung and kidney transplant in 2010....he is amazing as are YOU! So glad to know that you do so much for the foundation as it is needed. We do walks and donations particularly for organ donation and transplant awareness. My dad received a new liver Jan. 2012. We truly believe in the cause(s).
ReplyDeleteI agree you are brave and have so much to be proud of. Keep it up....your strong faith, husband and family will continue to carry you through.
Jessica
Hi Tara, I saw that you started to follow my blog this morning so I just wanted to stop by and say thank you for being my 100th follower. I am really liking what I have seen of your blog so far and will definitely be following along.
ReplyDeleteThank you for sharing your story, you are an inspiration and I think all the things you are doing to raise money towards research is incredible. I hope the next few weeks go smoothly for you, take care.
Wow! I'm speechless. Catching up on blogs in my google reader and finally made it down to this post. I've been a long time fan of your blog and am stunned and inspired by your strength and passion to live a "normal" life. I hope your "tune up" is going well. You are such an inspiration my friend! Prayers!
ReplyDeleteI love your blog, I have always thought you were the most sweet and geniune person I have met. God has blessed you,Thankful you can share it :) xo
ReplyDelete